As we begin another day wondering what's going on God has given us both peace. He has assured me that I am healed and He given Mylon peace and an abundance of ideas and questions for the doctors :) I didn't realize it at the time but he was meeting with them every morning at 6. This morning he informed them that if I didn't start getting better he was transferring me to Birmingham or Vanderbilt. If you know my husband this was not a threat but a promise.
So following their morning meeting and my normal morning visit from the doctor on Staff I begin yet another series of tests. We begin with an electromyogram (EMG) - a procedure that measures and records electrical activity from the muscles and nerves with mild electrical shocks to stimulate the nerves. Followed by a spinal tap. by know Mylon has worried the doctors with his ideas and my family and friends have started texting him their ides... Both of these tests are used to find symptoms or signs of Guillain-Barré syndrome or myasthenia gravis.
My morning ended with my fifth MRI - by now I am out of songs and scriptures verses. They have given me a button to push if I am having trouble but I am to weak to mash it - so I once more seek the Lord for comfort and release.
By the time I return to the room I can't even feed myself. My husband contacted my friend Sharon the night before at general conference and she calls. I tell her that I ok and to stay at her meeting - she is adamant about coming home but I finally convince her to stay at least until Saturday - I really did not want her to see me this way.
Once more I have to give Praise and thanks to God for the support of family and friends. Mylon's mom, siblings, nieces and nephews came every night - their support was remarkable. My poor brother had not only me to check on but his wife, my sister was also having surgery today. Praise God she did well!
As I previously mentioned I was in a semi-private room, so my roommate was released to health-south right after I returned from my MRI and me and hubby shared a laugh. They could not find her tennis shoes, they searched for them quitely loudly. They finally called the daughter -with the speaker phone on. She declared she knew momma shoes were there and if they were gone someone had stole them. Mylon lean over and asked me "why did I still the woman's shoes :) " they finally found them under the bed.
Friday afternoon, I was still a little uncomfortable from the spinal tap but just waiting on the test results. A first-lady friend stopped by to check on me and give Mylon a little break. Her visit was followed by the visit from other close friends and my god mother. I tried really hard to make conversation and the share with them that I was healed but they just couldn't see it yet.
Late Friday evening the Doctor came in and told us that everything looked like Guillain-Barré syndrome. He was 90% sure but it would be at least Tuesday before he got all the the test results in, but he did not want to wait that long to start treatments because I would just continue to get worse.
I didn't know then but a large number of people with Guillain-Barré syndrome ended up in ICU on ventilators and feeding tubes.... He tested my reflexes and I had absolutely none. He told us he wanted to do a blood test and based on the blood test results he would start treatments.
As we waited on the blood test results some friends visited (they of course were surprised by the change in me from Wednesday when they came by and today, they said "what happened" I could not help but laughed.
My night nurse came in around 9:00 and said the room next door was available for me. So everybody gathered up my stuff and moved my things. I had stood up earlier that day with the help of two physical therapist so I just knew I could stand and get a wheel chair under me... not happening.... Me and the nurse ended up on the bed! so she decided we better just move me in the bed (LOL).
About 10 that evening she came back and said the doctor had ordered five IVIG treatments (IVIG stands for intravenous immune globulin; it is a sterile solution of concentrated antibodies extracted from healthy donors which is administered into a vein.) for Guillain-Barré syndrome, beginning tonight.
My first treatment begin around Midnight and took about four hours. Mylon stayed with me, not sleeping much at all. The nurse came in around 2 and told him you say you preacher will God's got this and I have her so go to sleep.
So following their morning meeting and my normal morning visit from the doctor on Staff I begin yet another series of tests. We begin with an electromyogram (EMG) - a procedure that measures and records electrical activity from the muscles and nerves with mild electrical shocks to stimulate the nerves. Followed by a spinal tap. by know Mylon has worried the doctors with his ideas and my family and friends have started texting him their ides... Both of these tests are used to find symptoms or signs of Guillain-Barré syndrome or myasthenia gravis.
My morning ended with my fifth MRI - by now I am out of songs and scriptures verses. They have given me a button to push if I am having trouble but I am to weak to mash it - so I once more seek the Lord for comfort and release.
By the time I return to the room I can't even feed myself. My husband contacted my friend Sharon the night before at general conference and she calls. I tell her that I ok and to stay at her meeting - she is adamant about coming home but I finally convince her to stay at least until Saturday - I really did not want her to see me this way.
Once more I have to give Praise and thanks to God for the support of family and friends. Mylon's mom, siblings, nieces and nephews came every night - their support was remarkable. My poor brother had not only me to check on but his wife, my sister was also having surgery today. Praise God she did well!
As I previously mentioned I was in a semi-private room, so my roommate was released to health-south right after I returned from my MRI and me and hubby shared a laugh. They could not find her tennis shoes, they searched for them quitely loudly. They finally called the daughter -with the speaker phone on. She declared she knew momma shoes were there and if they were gone someone had stole them. Mylon lean over and asked me "why did I still the woman's shoes :) " they finally found them under the bed.
Friday afternoon, I was still a little uncomfortable from the spinal tap but just waiting on the test results. A first-lady friend stopped by to check on me and give Mylon a little break. Her visit was followed by the visit from other close friends and my god mother. I tried really hard to make conversation and the share with them that I was healed but they just couldn't see it yet.
Late Friday evening the Doctor came in and told us that everything looked like Guillain-Barré syndrome. He was 90% sure but it would be at least Tuesday before he got all the the test results in, but he did not want to wait that long to start treatments because I would just continue to get worse.
I didn't know then but a large number of people with Guillain-Barré syndrome ended up in ICU on ventilators and feeding tubes.... He tested my reflexes and I had absolutely none. He told us he wanted to do a blood test and based on the blood test results he would start treatments.
As we waited on the blood test results some friends visited (they of course were surprised by the change in me from Wednesday when they came by and today, they said "what happened" I could not help but laughed.
My night nurse came in around 9:00 and said the room next door was available for me. So everybody gathered up my stuff and moved my things. I had stood up earlier that day with the help of two physical therapist so I just knew I could stand and get a wheel chair under me... not happening.... Me and the nurse ended up on the bed! so she decided we better just move me in the bed (LOL).
About 10 that evening she came back and said the doctor had ordered five IVIG treatments (IVIG stands for intravenous immune globulin; it is a sterile solution of concentrated antibodies extracted from healthy donors which is administered into a vein.) for Guillain-Barré syndrome, beginning tonight.
My first treatment begin around Midnight and took about four hours. Mylon stayed with me, not sleeping much at all. The nurse came in around 2 and told him you say you preacher will God's got this and I have her so go to sleep.
